Wednesday, December 31, 2014

A Late Night Conversation Comments

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After two solid weeks of progress, of gains on physical therapy machines, of confidence building, of standing, walking, forward thinking… a day of despair, despondence… and fear.
Fear of the future; the place where this ALS takes us; the ignominious helplessness.
The doctors told her a while back to live day to day; focus short term. But how is that possible, really? But the suggestion is a good one, since some ALS patients sometimes require anti-depressant therapy, as well.
She's done a good job so far. And today, a day when we were quietly celebrating a brighter, more mobile future when a power wheelchair was fitted to her for a test drive, some decorations fell off the Christmas tree. I had heard that she had already had some "moments" earlier, and had teared up a few times.
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Bill Galvin

Bill Galvin

Boston, MA
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